What's Your Story ~ Chronic Fatigue Syndrome

A few years ago now I came down with a kidney infection that just wouldn't clear up, I had no energy, not even to get washed or dressed, then pain all over, not being able to sleep properly, forgetfulness, dizziness, bowel and bladder problems, the list goes on.

This carried on for quite a few weeks, then months, then numerous trips of going back and forth to the Doctors to see why I hadn't got my energy back and had developed all these symptoms.

If anyone has gone through this you'll know how long you have to wait in your present condition before the doctor will even refer you onto another department, but for those of you in the early stages, you have to have had your symptoms for at least 6 months before the doctor will refer you on to the Chronic Fatigue Clinic, but in that time you will have various tests which include:

  • Thyroid function test
  • Vitamin D
  • Iron
  • Celiac 
  • Liver function
  • Potassium
  • Kidney
  • Full blood count
  • Blood glucose

As well as all the blood tests, your doctor will more than likely prescribe you Antidepressants as they assume you are just depressed, a doctor telling you for 6 months that you are depressed makes you begin to believe it. 

In my case I was deficient in Vitamin D so I had  Vitamin D tablets and Antidepressants by the time I went to the CFS Clinic.

I had my first appointment for the Chronic Fatigue Clinic around 9 months after first going to the Doctor with my symptoms. With which I had to fill in a point scoring form and send off to them.

At that appointment it was with a group of other potential sufferers of CFS, the aim was to determine whether any of us actually had the condition, we learned about breathing, relaxing, sleeping, diet and stress and for 2 weeks we were to put that into practice, before receiving a phone call to go through all your symptoms and daily routine.

It was then another few weeks before receiving a letter with the outcome of the appointment and phone call, to be told they couldn't say 100% that it was fully Chronic Fatigue Syndrome and I would have to go back to the doctors.

This then started the ball rolling to see if I was suffering from Fibromyalgia.

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